Mason Arik: Long weekend...

Sunday, February 20, 2011

Long weekend...

We are still feeling the LOVE from Kansas City to London...

Here is a card from Sydney, Australia (Kelly's Place Children Centre)

Mason received a COCONUT from Hawaii on Saturday!! Everyone helped drill the holes and had fun trying fresh coconut. It was delicious!!!

Mason was honored to receive a signed KU basketball. Even more honored to surprise dad on his birthday.

What a weekend. Ally is feeling much better tonight after a nasty virus, that caused horrible tummy cramps. Mason is starting to become more and more frustrated with his physical challenges and headache pain in the evening. Mom is trying very hard to keep up and balance the family. Ice cream sundaes, coconut, and Legos seemed to add a few smiles. Mason's feet need to be elevated. Pain in his feet may be the start of neuropathy. (damage to the nerves) We are all ready to start a new week.
We had some time to read the Valentines from John Diemer Elementary, Overland Park, KS and some from Prince of Peace Catholic School in Olathe, KS. We also received some from Salina High School, KS (thanks so much) Smiles. I am cuddling with the family as we watch Alpha and Omega.

4 comments:

Unknown said...: Love you guys!!! Happy Birthday Eddie!! Keeping you in my heart and prayers as always!; February 21, 2011 at 6:43 AM
Unknown said...: I meant to say "keeping you ALL in my heart and prayers as always!" :) Oops- slight typo! :); February 21, 2011 at 6:45 AM
Anonymous said...: Happy Bday Eddie. Mason, Its great to see you in all the KU gear. Go Hawks! Hope this week beats the last.; February 21, 2011 at 9:04 AM
Mónica Martins said...: Hello Mason and Andria!
I've sent you some postcards from Lisbon - Portugal, you are probably receiving them anytime soon this week! Please let me know when you do, I'm very anxious ^^
Mónica; February 22, 2011 at 5:23 PM

Seasons of Wishes

About Mason Arik

To continue Mason's dream and his memory, we dedicate this blog to him. He has been diagnosed with Diffuse Pontine Glioma (Brain Tumor) (04/22/10). He courageously battled his cancer for 11 1/2 months. On March 29th, 2011, it was snowing in Heaven. He is and will be missed forever. We will continue to write and share the strength and courage that Mason has taught us as well as the many other lives he has touched, near and far. Links are listed below to provide additional information regarding DIPG.

Discovery of Tumor-Dx April 22, 2010

Beginning in March of 2010, Mason complained of severe headaches, mostly at night. Then the headaches went from 2-3 times a month (over a 2 month period) to every night and more severe, by the 3rd night I contacted his pediatrician. I was told to give him Excedrin Migraine.

But by the next day we were walking to school and he had double vision- Thanks to the school nurse, we scheduled an appointment that day with Sabates eye care. After his eye was dilated they noticed his eyes were shifting. An immediate MRI was scheduled.

After the most agonizing MRI, we went home awaiting the results. That's when we were told it was a tumor (pontine glioma) We waited to visit the doctor before researching the internet. So imagine the shock to hear this is the worst locations to find a tumor, inside the brain stem. (inoperable and unfortunately very serious)