Mason Arik: Day 270

Sunday, January 16, 2011

Day 270

Just being a kid. Friday afternoon, Mason joined Ally and Papa outside to make a snowman. Mason sat quietly as Ally ate scoops of snow. Instead of helping construct a snowman, Mason scooped up what he could and made a snow pillow. The smile on his face tells it better than I can describe in words. I left him alone in silence. It is hard to put in words when you suddenly realize you are unable to tackle the sledding hill, throw snowballs, or put a carrot nose on Frosty. Just sweet memories of Snow. And something about the magic of snow that can still bring a smile.

The boys watched their new favorite" Ninjago" (ninja Legos) show on Friday. Maverick and Mason were excited to find some spinning ninja legos at Target on Saturday. So thankful for the wheelchair so Mason can get out. It was also wonderful that Maverick, and Mason played with a close friend on Saturday. Especially, since Mason prefers no visitors. We respect his wishes, each day not knowing what to expect. Each day a new realization. It was all so different 270 days ago. To be; just a kid.
Live, Love, Laugh and Snow!! May God's love smile on you today.

1 comment:

Unknown said...: Thinking of you all always. Hugs and prayers to you.; January 16, 2011 at 4:24 PM

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About Mason Arik

To continue Mason's dream and his memory, we dedicate this blog to him. He has been diagnosed with Diffuse Pontine Glioma (Brain Tumor) (04/22/10). He courageously battled his cancer for 11 1/2 months. On March 29th, 2011, it was snowing in Heaven. He is and will be missed forever. We will continue to write and share the strength and courage that Mason has taught us as well as the many other lives he has touched, near and far. Links are listed below to provide additional information regarding DIPG.

Discovery of Tumor-Dx April 22, 2010

Beginning in March of 2010, Mason complained of severe headaches, mostly at night. Then the headaches went from 2-3 times a month (over a 2 month period) to every night and more severe, by the 3rd night I contacted his pediatrician. I was told to give him Excedrin Migraine.

But by the next day we were walking to school and he had double vision- Thanks to the school nurse, we scheduled an appointment that day with Sabates eye care. After his eye was dilated they noticed his eyes were shifting. An immediate MRI was scheduled.

After the most agonizing MRI, we went home awaiting the results. That's when we were told it was a tumor (pontine glioma) We waited to visit the doctor before researching the internet. So imagine the shock to hear this is the worst locations to find a tumor, inside the brain stem. (inoperable and unfortunately very serious)