Mason Arik: One pillow

Wednesday, March 23, 2011

One pillow

The agony, tears and frustrations. It's like having your hands tied. Ally wanting to run to Mason's rescue, "Maybe we should call the police, "Mom, call the doctor", "Is Mason o.k.?" "Mason what's wrong?" It's a whirl wind. We treasure laughter as pain tries to devour us. With every laugh; time stands still; it zaps us and energizes the moment. A simple laugh or that curvature of a smile.. getting us through..

Mason was able to find some comfort by propping a pillow on his side. Something so simple. One pillow making a difference.

The mail brought smiles again today, Mason received letters and cards from Martin Anderson Elementary in Wichita, KS and some special cards from Easton, KS. And a fun box filled with Easter eggs from Utah. The mailbox still continues to bring inspiration and strength; our gratitude to YOU!!
Finally a joke to end our day as Mason is already fast asleep... How do you wake up Lady Gaga?

You poke her face.

2 comments:

Anonymous said...: We're happy to hear that smiles are still arriving via mail :) Praying for more smiles!; March 24, 2011 at 9:43 AM
Anonymous said...: Thinking of you every day in Springfield. Wishing we could help. Your strength and courage inspire me everyday. Prayers; March 24, 2011 at 10:49 AM

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About Mason Arik

To continue Mason's dream and his memory, we dedicate this blog to him. He has been diagnosed with Diffuse Pontine Glioma (Brain Tumor) (04/22/10). He courageously battled his cancer for 11 1/2 months. On March 29th, 2011, it was snowing in Heaven. He is and will be missed forever. We will continue to write and share the strength and courage that Mason has taught us as well as the many other lives he has touched, near and far. Links are listed below to provide additional information regarding DIPG.

Discovery of Tumor-Dx April 22, 2010

Beginning in March of 2010, Mason complained of severe headaches, mostly at night. Then the headaches went from 2-3 times a month (over a 2 month period) to every night and more severe, by the 3rd night I contacted his pediatrician. I was told to give him Excedrin Migraine.

But by the next day we were walking to school and he had double vision- Thanks to the school nurse, we scheduled an appointment that day with Sabates eye care. After his eye was dilated they noticed his eyes were shifting. An immediate MRI was scheduled.

After the most agonizing MRI, we went home awaiting the results. That's when we were told it was a tumor (pontine glioma) We waited to visit the doctor before researching the internet. So imagine the shock to hear this is the worst locations to find a tumor, inside the brain stem. (inoperable and unfortunately very serious)