Necrosis, a new vocabulary word; it basically is the destruction of healthy tissue.
Mason's headaches and balance issues: necrosis. Apparently after visiting the local doctor, finding out the full report; necrosis was present at the September MRI. We were not shared this information. The point is now we know, this was a risk that can occur any time after radiation, 2 weeks to 10 years. It does add extra concerns, but it was not progression of the tumor. Steroid medication was recommended, only 35% of patients get relief. Mason is strongly against returning on steroid medication, we are up in the air. He does not want to be puffy ever again, I know he would rather fight the headaches. Mason had a GREAT day yesterday, but he also had a relaxing carefree day. Mason is ready to return to school on Monday; we will have a 3-day weekend to evaluate(no school on Friday due to in services) Mason wants to go to school and be with his friends. It is a bumpy road we are on, I will always be on guard about the slightest issue of pain. It was unbearable to see him with evening headaches again. As the slightest pain breaks my heart. He has had 2 days headache free. As far as the stomach pain, he will start Zantac. I know there will be good days and bad days, here's praying for a lot of good days in the months ahead.
Wish I would have taken pictures of the boys jumping in the leaves yesterday afternoon, it was great to hear their laughter. It was a beautiful Fall afternoon. The pictures below are from October 2003.
Many Links of Mason
- Mason's Legacy Continues December 2011
- Make a Difference for Mason-facebook
- Lights, Stripes, and SNOW-facebook
- Heartland Lions Eye Bank Article
- Brookridge BBQ video-facebook (2010)
- Magic of Christmas-Youtube
- 2010 Summer Memories-Youtube
- Channel 9 News Valentines for Mason
- Channel 41 Valentines for Mason
- Fox 4 News Keeping Mason's Memory Alive
- Dynamite Video - Youtube