Mason Arik: I'm Dreaming of a White February....

Thursday, February 2, 2012

I'm Dreaming of a White February....

February started with smiles. Yesterday, Ally woke up singing," Happy Birthday Maverick, she tried to bring him breakfast in bed, he respectively said no thanks to the brown banana she had squished in her hand. After school, Maverick celebrated by playing baseball at the park with his new Wiffle bat. It was fun watching the team get bigger and bigger, as kid after kid joined in. Dad got off early and it was a beautiful sunny day. Maverick gained some extra muscles carrying his treasure found from the neighborhood creek. He is determined to find what machinery this came from, I can see it as garden art this spring. (See above picture) Ally still pretend plays with Mason, he pushes her in the swing, slides down the slide; in more ways than one, he's always by her side. I know she will always remember the time they spent together, especially at St. Jude.

Speaking of St. Jude,everyone is invited to join us at a St. Jude benefit auction, Wednesday, Feb. 8 at Merriam Park Elementary school. We are looking forward to this fun evening. Maverick donated 3 Wiscurzoos, including the very first Star Wars Wiscurzoo. We can not say enough about the care and quality and the memories we will always have at St. Jude Children's Research Hospital. Mason and Ally always had something to do; and the staff and volunteers added smiles everyday. St. Jude is currently celebrating 50 years of finding cures and saving children.
If you get a chance we would love to see you on February 8. (see previous post for details)

I can't believe March is fast approaching, one year without Mason...just doesn't seem possible. .
Our hearts smiled as we received the most beautiful invitation in the mail yesterday. The girl scouts are having a father/daughter dance for the KC Zoo tigers in memory of Mason. The memory of Mason lives on... We will have a tree planted in Mason's memory in March, we would love to have you join us...details to come soon.

Last night, I dreamed I walked through halls in a trance, tears fell from my face, pain leaked from my heart. "It's good to cry; it lets out emotions that leave holes in our heart. Thank you for your continued support as Mason's memory reigns forever in our hearts. Even though nature hasn't brought us snow, we still have a dream. Happy Groundhog's Day, as Ally would say... Happy Molehogs Day! We hope you see your shadow!!! Each night we fall asleep reading Calvin and Hobbes, Mason's with us as we read. We can relate as a tiger follows our tracks too. Where ever you are, I hope your day is magical

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About Mason Arik

To continue Mason's dream and his memory, we dedicate this blog to him. He has been diagnosed with Diffuse Pontine Glioma (Brain Tumor) (04/22/10). He courageously battled his cancer for 11 1/2 months. On March 29th, 2011, it was snowing in Heaven. He is and will be missed forever. We will continue to write and share the strength and courage that Mason has taught us as well as the many other lives he has touched, near and far. Links are listed below to provide additional information regarding DIPG.

Discovery of Tumor-Dx April 22, 2010

Beginning in March of 2010, Mason complained of severe headaches, mostly at night. Then the headaches went from 2-3 times a month (over a 2 month period) to every night and more severe, by the 3rd night I contacted his pediatrician. I was told to give him Excedrin Migraine.

But by the next day we were walking to school and he had double vision- Thanks to the school nurse, we scheduled an appointment that day with Sabates eye care. After his eye was dilated they noticed his eyes were shifting. An immediate MRI was scheduled.

After the most agonizing MRI, we went home awaiting the results. That's when we were told it was a tumor (pontine glioma) We waited to visit the doctor before researching the internet. So imagine the shock to hear this is the worst locations to find a tumor, inside the brain stem. (inoperable and unfortunately very serious)