Mason Arik: February Update

Sunday, February 12, 2012

February Update

Full speed ahead. Thank you for understanding how crazy life can be. Friends, you are on our mind and in our hearts. Please forgive us if we have not told you recently how much you mean to us. I feel like I can't catch up as life is moving by. Thank you friends, you are the sunshine that peeks through the fog. Thank you. It just does not seem possible that March is around the corner. There are a list of events ahead; we would be honored if you'd like to join us. Thank you for remembering Mason. Thank you friends and family.

Wiscurzoo update: Since January, Maverick has sold 104 Wiscurzoos and donated 18. Yesterday, Wiscurzoos made their first debut as "birthday party favors"at a Bowling party.
February 23, Maverick is invited to speak in Harrisonville at a quilter's guild.
A HUGE thank you to Marilyn. Thank you for helping stuff, sew and sell Wiscurzoos. We are so thankful for your time and support.

Valentines Day - the 4th graders at Maverick's school are making Valentines by using the cards we received in the mail last year. Maverick and I will then deliver to the Ronald McDonald houses in Kansas City, Mo.    It means so much to be sharing the love and smiles from last year.

THANK YOU!!   A BIG THANK YOU to the Alpha Alpha Chapter of Alpha Delta Kappa for their silent auction to benefit St. Jude. All the money raised will be donated in Mason's name. We are so honored, our deepest thanks.   Thank you everyone for your time, dedication and your support.

I am speechless. Soon after the auction,we received the most inspiring invitation from the Brookridge Girl Scouts. They are honoring Mason and the tigers at their father/daughter dance. I can not begin to tell you how much this means to us. To Mason.

HOPE is alive, thanks to YOU. Thank you for being a part of our journey.

UPCOMING EVENTS (Details TBA)

March 2- The Brookridge Girl Scouts father/daughter dance.

March 29-We will plant a tree in memory of Mason and release green balloons. We would love to see everyone wear Make a Difference shirts and wear green.

April 28 at Corporate Woods Walk for Wishes (benefit for Make-a-Wish)

May- We hope the Sumatran tigers at the KC Zoo will have a remodeled cage (this will be temporary until further expansion of the zoo) We are so EXCITED for the TIGERS!!!

June 9- Braden's Hope for Childhood Cancer Walk in Olathe

August 26- Head for the Cure in Corporate Woods-We would love to see everyone again this year!

P.S.

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About Mason Arik

To continue Mason's dream and his memory, we dedicate this blog to him. He has been diagnosed with Diffuse Pontine Glioma (Brain Tumor) (04/22/10). He courageously battled his cancer for 11 1/2 months. On March 29th, 2011, it was snowing in Heaven. He is and will be missed forever. We will continue to write and share the strength and courage that Mason has taught us as well as the many other lives he has touched, near and far. Links are listed below to provide additional information regarding DIPG.

Discovery of Tumor-Dx April 22, 2010

Beginning in March of 2010, Mason complained of severe headaches, mostly at night. Then the headaches went from 2-3 times a month (over a 2 month period) to every night and more severe, by the 3rd night I contacted his pediatrician. I was told to give him Excedrin Migraine.

But by the next day we were walking to school and he had double vision- Thanks to the school nurse, we scheduled an appointment that day with Sabates eye care. After his eye was dilated they noticed his eyes were shifting. An immediate MRI was scheduled.

After the most agonizing MRI, we went home awaiting the results. That's when we were told it was a tumor (pontine glioma) We waited to visit the doctor before researching the internet. So imagine the shock to hear this is the worst locations to find a tumor, inside the brain stem. (inoperable and unfortunately very serious)