Mason Arik: The colors of the rainbow

Wednesday, May 2, 2012

The colors of the rainbow

Hello again. It's been awhile. Yesterday at 11:50 p.m another angel entered heaven, a precious girl named Harley. I've never met her, she had brain cancer too. May 1st, brain cancer awareness month. I am left speechless, and I have been lately. Here are the repeated swirls in my head ready to escape. I will not stop, my mind constantly shuffling, invisible pain buried deep, trying to turn bad into good, battling when to keep my mouth shut, watching the tidal wave creep overhead, keeping my eyes wide open for a glimpse of a rainbow.
Ally could see the colors in the sky after the brief rainstorm yesterday. She learned so much from Mason. He could see a rainbow when there was none. He knew when I needed a smile. He taught Ally laughter. Yesterday, the gray clouds hung. Ally put me back on track; "Mom, I had a dream last night I was flying with underwear on my head and eating Kit-Kats"
She keeps me on my toes, " Mom, what are patios made out of?" (as she tapped the sidewalk) and why is it different color than the street?" Concrete is such a hard subject. But her inquisitive mind made my heart burst with a smile. She lights the fire inside. As we walked hand in hand on our way to have lunch with Maverick. I am so proud of Ally and Maverick.
There will always be a fire burning inside. We all have our own dreams and goals, desires to move ahead, make a difference, and spread random acts of kindness. Life is all about keeping our eyes wide open, catching a glimpse of the rainbow ahead, and savoring Kit-Kats in the middle of the night...
Here's to Mason and Harley for teaching us those precious moments. Why so many brave little souls? God knows my anger. I pray for understanding....for unanswered prayers... from a mind running in circles.

To infinity and beyond..

Hope is here, we can make a difference. We will never be silent. Hope is alive in every color of the rainbow.

For the fire in our souls and the colors of the rainbow:

June 9 at the Braden's Hope Walk for Childhood Cancer
http://www.active.com/donate/hopewalk2012/masonarik

August 26- Head for the Cure 5K at Corporate Woods registration is now open you can join team Make a Difference for Mason
https://www.vergeregistration.com/Events/HFTC/Head-for-the-Cure---Kansas-City-2012/Register/Participation

September 15- Run for the Tigers at the KC Zoo The 9th Annual Run
http://www.kansascityzoorun.org/

No comments:

Post a Comment

Seasons of Wishes

About Mason Arik

To continue Mason's dream and his memory, we dedicate this blog to him. He has been diagnosed with Diffuse Pontine Glioma (Brain Tumor) (04/22/10). He courageously battled his cancer for 11 1/2 months. On March 29th, 2011, it was snowing in Heaven. He is and will be missed forever. We will continue to write and share the strength and courage that Mason has taught us as well as the many other lives he has touched, near and far. Links are listed below to provide additional information regarding DIPG.

Discovery of Tumor-Dx April 22, 2010

Beginning in March of 2010, Mason complained of severe headaches, mostly at night. Then the headaches went from 2-3 times a month (over a 2 month period) to every night and more severe, by the 3rd night I contacted his pediatrician. I was told to give him Excedrin Migraine.

But by the next day we were walking to school and he had double vision- Thanks to the school nurse, we scheduled an appointment that day with Sabates eye care. After his eye was dilated they noticed his eyes were shifting. An immediate MRI was scheduled.

After the most agonizing MRI, we went home awaiting the results. That's when we were told it was a tumor (pontine glioma) We waited to visit the doctor before researching the internet. So imagine the shock to hear this is the worst locations to find a tumor, inside the brain stem. (inoperable and unfortunately very serious)